05/06/2026
Last montH, I spoke at the Care Not Custody campaign event, co-organised by the Global Mental Health Action Network (GMHAN) and the Office of the United Nations High Commissioner for Human Rights (OHCHR), on the urgent need for deinstitutionalisation, at the World Health Assembly 🇨🇭
I spoke about a difficult truth: across the world, people experiencing madness, distress, and psychosocial disability continue to face coercion, detention, seclusion, restraint, forced treatment, and other practices that would be unacceptable in most areas of healthcare.
These are not historical issues. They are contemporary human rights issues.
My mother experienced trauma, abuse, poverty, and abandonment. Labelled with Borderline Personality Disorder, she repeatedly entered systems that often responded to her suffering through diagnosis rather than understanding. One week after being discharged from hospital, she died by su***de.
The last time I saw my mother was in a psychiatric hospital.
Years later, I found myself cycling through similar systems. Too often, I encountered environments focused on containment rather than healing.
These experiences taught me that one of the greatest barriers to justice is sanism — the belief that people experiencing madness are less credible, less capable, and less deserving of autonomy and dignity.
Across the world, Mad movements, psychiatric survivor movements, disability justice movements, and peer-led initiatives have long argued that there is another way.
The answer is not more institutions or more coercion. The answer is housing, peer support, mutual aid, trauma-informed approaches, culturally grounded healing, and rights-based community support.
Deinstitutionalisation is not about abandoning people.
It is about ending abandonment disguised as care.
If you have lived or living experience of institutionalisation, involuntary treatment, seclusion, restraint, or other restrictive practices, I encourage you to join the Care Not Custody Experts by Experience group and help shape this international work.
Nothing about us without us.
Learn more: https://unitedgmh.org/care-not-custody/