Hayden Jay Esser was born on October 9th, 2015. Hayden was born with a very rare skin condition that with the slightest bump or scrap his skin will blister and fall off, its called Epidermolysis Bullosa also know as the EB the butterfly disease or they are also called The Butterfly Children. The type of EB Hayden has is called Dystrophic Epidermolysis Bullosa (DEB) which is one of the 3 worst typ
e to have. The family is trying to spread awareness for EB children, EB is so rare that its about every 7 out of million children every year and most of them DONT make it to there FIRST birthday sadly. Like Hayden, EB children are NOT guaranteed a tomorrow so we need to spread awareness and find a cure NOW. We started a wonderful trend to show our fight and support Hayden in the process by SHOWING OUR SEAMS!! Show Your Seams came about when Hayden now 11 months old is to the point where he has to wear everything "inside out" and so my 9 year old daughter said we should make a page to help raise awareness for Hayden and all EB children that have to show there seams. Hayden spent a week in the NICU at the University of Missouri Women's and Children's Hospital in Columbia , and one of the conditions for him to go home was to try and see if he could wear clothes and eat without a tube. So on the 5th day of birth we put clothes on him inside out. Well now 8 months later we have to go back to wearing his clothes inside out to try and prevent his torso for getting stuck to clothing and blistering or his skin coming off. Hayden was born with a rare skin disease called " Epidermolysis Bullosa (EB). Show Your Seams is dedicated in sharing Hayden's' story, and to spread awareness to the world about Epidermolysis Bullosa (EB). Literally " THE WORST DISEASE YOU'VE NEVER HEARD OF". As each new person Shows There Seams, it shows us that there is still HOPE for Hayden and EB children and adults and show them they are not alone. Please join us in our efforts in raising awareness about Epidermolysis bullosa and our fight to find a cure for Hayden and all other individuals suffering from this HORRIBLE disease. Thank you all!!!!
