Hannahtopia

Hannahtopia We created the NillyNoggin EEG Cap and are helping others battle through their Epilepsy testing!

Positive news! πŸ’œπŸ’ͺπŸ’œ
04/23/2026

Positive news! πŸ’œπŸ’ͺπŸ’œ

Ten-year-old Oli and his family have spent much of his young life searching for the missing piece of a puzzle, a treatment for a debilitating form of childhood epilepsy known as Dravet syndrome. The condition produces convulsive seizures that can strike with little notice and can be triggered by a w...

04/22/2026
Shenanigans with Brave Bear! Brave Bear's in the Hannahtopia Shop getting caught up in making NillyNoggin EEG Caps! Some...
01/24/2026

Shenanigans with Brave Bear! Brave Bear's in the Hannahtopia Shop getting caught up in making NillyNoggin EEG Caps! Someone's trying to sneak a ride to Boston Children's!

WE ARE 1 IN 26! You said it best Kate ~ BEST CLUB WORST CLUB! πŸ’œπŸ’œπŸ’œ

7 days into Epilepsy Awareness Month! We started off our day with a 3am terrifying Tonic Clonic seizure.Take a look at t...
11/07/2025

7 days into Epilepsy Awareness Month!
We started off our day with a 3am terrifying Tonic Clonic seizure.
Take a look at these facts n stats.
Do you know someone living with epilepsy?
It's an absolutely awful diagnosis.
Statistics do show that 70% of people can become seizure-free with the right treatment. Seizure freedom but still need to be aware of seizure trigger activities.
Hannah's part of the 30% that has drug resistant epilepsy, leaving her with uncontrolled seizure activity & at high risk for S.U.D.E.P.

We are sharing to spread awareness about epilepsy, often referred to as an 'invisible disability'. Feel free to share as well.


Great news!!! πŸŽ‰πŸŽ‰πŸŽ‰
08/03/2025

Great news!!! πŸŽ‰πŸŽ‰πŸŽ‰

πŸ’œExciting news!!!! THIS IS FOR REAL!!!
Sofie's Journey/Epilepsy Awareness Day at DisneyLAND is proud to support the 1st Annual Epilepsy Awareness Day at DisneyWORLD! That’s right friends, BOTH coasts!
For those that say California is too far, now we’ve got the real thing happening in Florida. Epilepsy Alliance Florida has our blessing! πŸ’œ See y’all in CA in November and in FL in April 2026! Please follow: www.epilepsyawarenessdayfl.org for all the details!πŸ’œ

06/29/2025
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06/29/2025

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"Please do not mistaken my non-participation as being lazy and uninterested, you see ... I have seizures."

"Believe me, I want to participate in class, show off my skills, run around in the sunshine and kick that ball ... many times these things are just not possible ... I have seizures. It is difficult to explain exactly how I feel inside after a seizure ... I am non-verbal."

Each seizure can leave someone with a debilitating headache for days, dazed and confused, in a fog, nauseous, antsy or simply feeling like a train hit them. Top this off with the side effects from traditional seizure medication and you have a double whammy.

Always have a little extra patience and compassion. You never know what storm someone is going through.

As a parent of a young lady that has seizures, I am her number one advocate and strive to surround her with loving, compassionate people that have the patience that she needs. Be aware of how your child is being treated, ask questions and observe. You are their biggest cheerleader. These little warriors have earned their stripes and should be treated as such.

πŸ’œπŸ’œπŸ’œβ 

Another opportunity to apply for a scholarship to attend Epilepsy Awareness Day at Disneyland  !This one is through Epil...
06/18/2025

Another opportunity to apply for a scholarship to attend Epilepsy Awareness Day at Disneyland !
This one is through Epilepsy Alliance America

Also take a look at the Chelsea Hutchison Foundation andthe The Danny Did Foundation!

Back by Popular Demand! Epilepsy Alliance America will HOST the DANCE PARTY on Tuesday, November 11. The event is FREE OF CHARGE to attendees. Registration opening soon! The Dildine Family was…

A fantastic opportunity!
05/14/2025

A fantastic opportunity!

πŸ“’TRAVEL GRANTS AVAILABLE!

Epilepsy Awareness Day at Disneyland (EADDL) - which includes a FREE 2-day Educational Expo - will be held this fall from November 10th- 12th in Anaheim, California. We want to see as many epilepsy families as possible at the Happiest Place on Earth!

πŸŸͺ is offering travel assistance grants for those who do not live near and need travel support to join the fun. To apply for this travel reimbursement grant, please complete our online form at www.tinyurl.com/EADDL2025

πŸŸͺNOTE: Anyone is welcome to apply, but support will be prioritized for those who have not received prior funding. The winners will be contacted by email.

To learn more about the EADDL event, please visit https://epilepsyawarenessday.org/

We are thrilled to be a Regional Step Partner for the  's 10th Annual Walk 'n' Wheel!This cause holds a special place in...
04/26/2025

We are thrilled to be a Regional Step Partner for the 's 10th Annual Walk 'n' Wheel!

This cause holds a special place in our hearts, as it relates to Hannah's diagnosis of Lennox-Gastaut Syndrome.

We’re excited to participate this year in Virginia!

I've participated in numerous LGS events over the years, but this will be Hannah's first experience! I'm really looking forward to her meeting everyone!

Our aspiration at Hannahtopia is to continue growing so we can enhance our support for epilepsy non-profit organizations that are conducting vital research for a cure!

We need to discover a cure for epilepsy and all related diseases! I am incredibly thankful for the non-profit organizations that are working tirelessly to find a cure!

See ya at the walk!


Purple Day is March 26th. An international day to spread the word about Epilepsy! πŸ’œπŸ’œπŸ’œ
03/26/2025

Purple Day is March 26th. An international day to spread the word about Epilepsy! πŸ’œπŸ’œπŸ’œ

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