07/22/2026
Today is Fragile X Awareness Day, and I’m sharing something very personal.
Many of you know my son, Sam, or have undoubtedly heard me talk about him over the years. Sam has Fragile X syndrome, the most common inherited cause of intellectual disability, and he was diagnosed in 2008.
Receiving that diagnosis was overwhelming to say the least. We were suddenly navigating a world we knew very little about, searching for answers, guidance, and hope. The National Fragile X Foundation became an invaluable resource for our family. From the moment of diagnosis and throughout every stage of life, they provide education, support, advocacy, and a community that has helped guide us every step of the way.
Watching Sam work so hard every day to navigate challenges that most of us never have to think about has changed my perspective on life. His resilience, determination, and joy inspire me every single day. Like so many families, we’ve spent years learning, growing, and celebrating every milestone together.
I recently returned from the National Fragile X Foundation International Conference in Louisville, Kentucky. It was an incredible experience filled with learning, connection, and hope. Thanks to the Foundation’s scholarship program, families from across the country are able to attend and access these life-changing resources.
Today I’m raising funds for the National Fragile X Foundation Scholarship Fund in honor of Sam Hatam. If you’re able, I would be so grateful for a donation of any amount.
Thank you for supporting our family and this amazing organization that has been there for us from the time of Sam’s diagnosis through every stage of his life. Your kindness truly makes a difference.
Not pictured: the hard days, the unexpected detours, and the coffee that got us through them. ☕💚
