Islas Army

06/09/2026

06/09/2026

06/09/2026

Today is Batten Disease Awareness day!

05/04/2026

Don’t forget to buy your Batten Disease merch for this years Batten Disease Awareness Day
Isla Strong - Our Journey with Batten Disease, CLN2

🚨🚨 FINAL CALL FOR MERCH 🚨🚨

If you want your “Love Hope Cure” merch to arrive by International Batten Disease Awareness Day on June 9, ORDER NOW: https://ow.ly/A3OH50YOLAb

04/22/2026

03/19/2026

Happy LUCKY 7th Birthday Isla 🥳🎉

Isla got to celebrate with friends at school this AM✨ she is LOVED by all her peers. So many high fives, fist bumps, and hugs!♥️

02/12/2026

Every vote counts! We love BDSRA Foundation ♥️♥️♥️♥️

WE NEED YOUR VOTES: https://ow.ly/h4Yr50YcxSm

BDSRA has been nominated for Project for Awesome 2026. P4A is an annual event that raises awareness of charities that are doing good work across the world. P4A raises money to redistribute to charities voted on by our community. You will need to create an account to cast votes, and you may only vote once per charity per account!

10/28/2025

10/18/2025

This year we will be honoring the beloved Alice Saunders; Isla’s Great Grandmother, who passed away recently. Alice was a huge part of the Strafford community, and was always there to greet her peers at many great events.

When planning Isla’s Trunks Treats & Trails 3 years ago, we were inspired by the Haunted Hallow put on by the Strafford SwampStompers. Alice was the first person you talked to as you entered the event each year as she ran the admissions.

We love you Alice🕊️

10/18/2025

Today is Isla’s Annual Trunks, Treats and Trails 🦇👻🎃

Trunks please arrive 2:30/3pm to set up🛻

We are so excited to see everyone🧙‍♀️💀