Premature and NICU babies UK - family support community

Premature and NICU babies UK - family support community A community support group for NICU families. Find solidarity, hope and understanding here from other families in similar situations.

Set up in 2022 by preemie mum Lorna and neonatal nurse Beth from SuperDinky.

Hi 🙋🏻‍♀️ I’m Lorna! If you are new here, this is what we are all about! Bringing joy to the nicu, building community and...
04/08/2026

Hi 🙋🏻‍♀️ I’m Lorna! If you are new here, this is what we are all about! Bringing joy to the nicu, building community and trying to raise awareness to make real structural change!!

Please FOLLOW so you can help us (me and you) do it!

If you wanna gift a teeny vest to a family in the nicu right now you can comment parcel and I’ll send you a link.

If you are a nicu parent and would like to join our WhatsApp group DM me.

Thank you for being here!

Lorna xx

Huge thanks to Kylie Pentelow for having me on BBC Woman's Hour this morning with Leo’s to take about NICU and why there...
03/08/2026

Huge thanks to Kylie Pentelow for having me on BBC Woman's Hour this morning with Leo’s to take about NICU and why there should be more support for parents!

I find it staggering that people don’t know the following:

1 in 7 babies spend time in the NICU

40% of parents get PTSD symptoms after (25% are formally diagnosed) I think the real rate is much higher!

NICU doesn’t end at discharge

We need opt out mental health support which catches us during the first year and far beyond.

It makes economic sense and emotional sense for the wellbeing of families in to the future to have a dedicated mental health pathway for nicu families.

HUGE HUGE appreciation for Kylie Pentelow and BBC Woman's Hour for listening to our calls to have this conversation.

I think we made a significant step towards change today. Time will tell.

Change happens a tiny moment at a time. Will this conversation be heard by those who make the decisions? Let’s see.

Thank you to everyone who shared their experiences with me, I hope i represented you well.

Love Lorna

Xx

Update on orders! Thank you so so much for all the orders! I can’t wait to see everyone in their one in seven tees 💜🫶🏻Th...
31/07/2026

Update on orders! Thank you so so much for all the orders! I can’t wait to see everyone in their one in seven tees 💜🫶🏻

The women’s in black is the standout bestseller. Next is the white tee in size 3-4 or 5-6, then the black mens tee.

If you missed the boat; you can still order-

Printer to order. Shipped within 7 working days.

Comment seven for a link.

ONE IN SEVEN BABIES SPEND TIME IN THE NICU! One in Seven awareness tee orders are being shipped this week! Thank you SO ...
30/07/2026

ONE IN SEVEN BABIES SPEND TIME IN THE NICU! One in Seven awareness tee orders are being shipped this week!

Thank you SO SO MUCH if you have ordered from our new range. I am printing them all to order so your order is being made just for you.

I’m sending out a big batch today ! All made with love by a nicu mama so I hope you love them and wear them with pride

Please tag me if you want to! I LOVE to see pics in the wild! 💕💜🫶🏻

And please do check out the range if you missed the launch; comment SEVEN and I’ll send you a link 🔗

Love Lorna

P.s. I may or may not have been up until 2am packing orders 😜 good job I love what I do!

Bestsellers so far! So many families shopping the black men’s tee, women’s black tee and kids white tee. All with the br...
23/07/2026

Bestsellers so far! So many families shopping the black men’s tee, women’s black tee and kids white tee. All with the bright and joyful message that 1 in 7 babies spend time in NICU.

Tom octopus (our mascot) has been reworked into a nicu babe complete with a photo therapy eye mask. Around him are 6 other like sea creatures. He is the one in seven.

I designed this print because I couldn’t get the figure out of my head. One in seven. That’s not rare. It’s something everyone should know.

Thank you for the orders so far and helping to spread awareness.

The link to shop is in our bio, or comment SEVEN and I’ll shoot you a link to this pages on our store

Thank you!
Lorna

23/07/2026

ONE IN SEVEN BABIES SPEND TIME IN NICU. Shop our awareness raising tee at www.superdinky.co.uk

For the babes who lived it.
For the families who lived it.
For the friends who stood by their side.

NICU is not rare, it’s 1 in 7.

Now we can joyfully celebrate our nicu babes and also make our experience seen.

I feel immense pride wearing mine and I hope you do too.

Love Lorna
Nicu mum & co-founder

All orders of this tee will be make to order, especially for you. Always organic, even the caps. 🧢

Www.superdinky.co.uk

Lorna xx

One In Seven collection - launching Thurs ! 9pm 🕘 ⏰  One in seven babies spend time in the NICU.We are celebrating our n...
22/07/2026

One In Seven collection - launching Thurs ! 9pm 🕘 ⏰

One in seven babies spend time in the NICU.

We are celebrating our nicu warriors and raising awareness! Bright and joyful 🌈🌈🌈🌈

Everything is online so you can take a peep 👀 but not able to shop until 9pm tomorrow.

If you get our emails you’ll get an early access email! 📧 if you want to join comment SEVEN and sign up

Www.superdinky.co.uk

P.s. why am I spinning around? 😂 felt like it would show the shape of the women’s tee fit? It’s boxy but silky as made of cotton/ modal. If I reached up high you’d see my stomach so we also have the longer back print tee (see here on Stu but it’s unisex)

Love Lorna x

Such a fun day yesterday at the last ever 😭Splendour Festival and obviously I roped my sister into a photoshoot 🫶🏻💕💜 One...
20/07/2026

Such a fun day yesterday at the last ever 😭Splendour Festival and obviously I roped my sister into a photoshoot 🫶🏻💕💜

One in seven range dropping this week! Adding to the website today!

Emails will be the first to know! You’ll get a 10am email so if you wanna sign up comment SEVEN

 festival in my One in Seven tee ! Millie’s sparkly stall caught my eye and I got chatting with her and her lovely mum (...
19/07/2026

festival in my One in Seven tee ! Millie’s sparkly stall caught my eye and I got chatting with her and her lovely mum (who she employs!!)

Millie started her business at 11 at school selling crystals to her pals and now she is here! Her stall was heaving!

I’ve left my nicu babe at home as he doesn’t love festivals as much as I do and I honestly couldn’t have imagined that life would be like this when he was in the nicu. (That we could be apart and I would be fine and he could be fine)

I guess what I’m saying is, keep going. Keep going and things will change.

sending so much love to you if you are reading this from the nicu. It’s unbelievably hard. Keep taking it one day or moment at a time 🫶🏻

One day life will be different.

Love Lorna
Preemie mama

Address

Nottingham

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